How A Reporter’s Investigation Of Appalachia’s Black Lung Epidemic Pushed Federal Officials To Respond

Miners are suffering from an advanced version of black lung disease known as progressive massive fibrosis. It’s the result of digging at increasingly thin coal seams. That means they’re also cutting into quartz, which creates silica dust. Advanced black lung results from breathing in that blend of silica and coal dust.

Updated on Oct. 10, 2023 at 11:30 a.m.

This story originally aired in the Oct. 8, 2023 episode of Inside Appalachia.

The coal-producing regions of central Appalachia are at the center of an epidemic of advanced black lung cases among coal miners. New reporting by a retired NPR reporter has shown how federal officials underestimated the sheer number of cases across West Virginia, eastern Kentucky and southwestern Virginia, and now regulators seem to be responding.

Miners are suffering from an advanced version of black lung disease known as progressive massive fibrosis.

It’s the result of digging at increasingly thin coal seams. That means they’re also cutting into quartz, which creates silica dust.

Advanced black lung results from breathing in that blend of silica and coal dust. 

Retired NPR reporter Howard Berkes has been covering this story for years.

He worked with NPR and the PBS series Frontline, and spent more than a year investigating fears that federal regulators and mining companies were failing to protect coal miners from toxic dust.

He and his team obtained documents and data showing federal mine safety officials had evidence of the danger dating back more than 20 years, but never addressed it.

Howard Berkes spent 38 years as an NPR Correspondent. His investigative reporting exposed an epidemic of advanced black lung disease affecting thousands of coal miners, and decades of failure of federal regulators to take steps to prevent it.

Credit: Wanda Gayle

In 2018, Berkes reported that more than 2,000 miners were dying of illness related to that toxic dust. Since that story aired, at least four of the miners in it who appeared have died, and at least two have received double-lung transplants. Danny Smith, who was prominently featured, is being assessed for a double-lung transplant.

Danny Smith spent just 12 years mining coal in eastern Kentucky and was diagnosed with the advanced stage of black lung disease at 39. Both are shocking numbers because it used to take decades of mining for coal miners much older to get as sick as this.

Credit: Elaine McMillion Sheldon/PBS Frontline

Lately, the metallurgical coal industry has been ramping up production to meet global demand, and experts predict even more advanced black lung cases will appear. After years of inaction, though, federal officials are addressing the issue.

Over the summer, the Mine Safety and Health Administration proposed a rule intended to protect coal miners from exposure to silica dust. By the time the comment period closed in September, the draft rule had attracted 157 comments.

Now, Berkes is part of a new investigation into advanced black lung cases that was co-published by Public Health Watch, Louisville Public Media and Mountain State Spotlight. Inside Appalachia Host Mason Adams spoke with Berkes about what his team found.

The New Beginnings Pulmonary Rehab Clinic in South Williamson, Kentucky, features photos of coal miners with advanced black lung disease, including those who have not survived.

Credit: Elaine McMillion Sheldon/PBS Frontline

The transcript below has been lightly edited for clarity.

Adams: So your work in the past, your investigations have in the past have seemed to have resulted in some action. Now MSHA has proposed some new regulations for monitoring silica dust.

Berkes: Yeah, MSHA has taken two very significant steps in this proposed rule. One is to make the exposure limit for silica dust twice as tough as it has been. That was recommended by the National Institute for Occupational Safety and Health back in 1974, and it was recommended again by the Labor Department’s own mine dust advisory committee in 1996.

It’s taken all these years for MSHA to finally adopt what has been long recommended, this tougher limit to exposure to silica dust. That’s a major, major improvement. The second thing that they did is that they decided to regulate overexposure to silica dust directly. In the past, they applied a complicated formula: If a mining company had too much silica dust, then the mining company had to lower the amount of overall mine dust, coal dust and silica dust in the air. That was supposed to bring down the silica dust exposure to an acceptable level. But it’s not a one-to-one relationship.

What we found in our previous investigation was 9,000 overexposures to silica dust, even after the mining companies responded to the regulation that was in effect at the time. So now MSHA is directly regulating silica dust. There can be citations and fines associated with exceeding the silica dust level, that has never happened in the past. So those are two very promising elements of this proposed rule.

This slogan appeared in a Department of Labor document warning about silica dust exposure in workplaces, including mines, in 1997, 26 years before the Mine Safety and Health Administration proposed tougher restrictions on exposure to silica dust.

Credit: Mine Safety and Health Administration

Adams: There have also been some criticisms of the proposed rule as well.

Berkes: Yeah, mostly on enforcement and oversight. There really is no regular oversight built into the rule. The rule requires mining companies to conduct an enormous amount of sampling of dust, and to record the results of those samples. If they show that there’s overexposure to silica dust, the rule requires that the mining companies then make changes in the way they’re mining so that the silica dust is reduced. There are various things that can be done: they can increase the ventilation, they can make sure that their water sprays on the mining machines are working properly. Those are two key elements in managing dust in coal mines. They can slow down the mining machines and not mine so quickly. They can stop mining a seam that has so much quartz in it. Those are all things that mining companies are required to do once there’s excessive dust. And while they’re doing those things, they’re allowed to continue to mine. 

They’re allowed to let miners continue to work in what are dangerous levels of dust. But miners must wear respirators; that has its own set of problems. We’ve interviewed dozens and dozens of miners since 2016, and they all complain about the dust masks not working properly clogging up, inhibiting their breathing, getting too hot, inhibiting their ability to communicate with fellow miners in a very dangerous environment.

There are new helmets out that are very effective for protecting miners from dust, but they can block vision and can block communication in ways that can become dangerous in a coal mine. The main problem with all of this is that MSHA is not going to be watching all the time. Mine inspectors only go into coal mines four times a year, and they’ll do their own sampling when they’re in there. They can ask to see the results of the sampling the mining companies have done. But what this means is that most of the time, there will be no Mine Safety and Health Administration oversight and enforcement of this new rule. It’ll be up to the mining companies. And as coal miner after coal miner after coal miner who we’ve interviewed over the years will tell you, some mining companies have conducted fraudulent sampling over the years. As recently as last year, there was a criminal prosecution in Kentucky for fraudulent dust sampling.

A display at the National Institute for Occupational Safety and Health in Morgantown, West Virginia shows how much damage results from exposure to coal and silica dust.

Credit: Howard Berkes/NPR

Adams: MSHA has been collecting comments on these proposed rules and they’ve been hearing from miners and advocates in the coal industry. By the time this segment airs, that comment period will have come to a close. But in the last few days, Public Health Watch has published a new investigation with Louisville Public Media and Mountain State Spotlight that calls into question some of MSHA’s projections on which it’s basing this rule. Can you tell us a little bit about that investigation and what your team found?

Berkes: Sure. One of the things that really struck me in the very extensive and dense document that MSHA has produced to justify what it wants to do, is they project how many lives will be saved, and how much disease will be avoided if this new rule is permitted to take effect. What really shocked me was that the projection for coal mines was 63 deaths avoided over 60 years — a little more than one a year — and 244 cases of black lung disease avoided over 60 years. That just doesn’t make sense, given how much disease has actually occurred, which MSHA never mentions in its document. And so we calculated how much disease has occurred by continuing our survey of black lung clinics — both independent clinics and clinics that are funded by the federal government.

What we found, which MSHA doesn’t mention, is that in just the last five years, there have been 1,500 new cases of progressive massive fibrosis, the advanced stage of black lung disease, as reported by these clinics. The total since 2010, since that’s as far back as we go in our survey of clinics, is over 4,000 cases of this horrific, fatal disease. There is no cure. We also, by the way, looked at how many excessive exposures there have been in coal mines in recent years. At the new limit — say the new limit was in place since 2016 — we found over 5,000 excessive exposures at the new limit.

So what these numbers sort of provide is a sense of how serious this situation is, how much over exposure continues to occur, and how much disease continues to occur. That’s not in this proposed rule making. In fact, the numbers presented for silica dust exposure since 2016 by the Mine Safety and Health Administration, they just have numbers from 2016 to 2021. They don’t report how many excessive exposures there were in this document. They report that there were 93 percent of exposures that were within the limit. Well, that sounds like a great number, 93 percent. It sounds like, “Oh, things aren’t so bad.” But that other 7 percent represents more than 5,000 excessive exposures. And because this is such a toxic substance, that’s a lot of potential disease and death. You got to understand that for proposed rule making that this process involves.

Federal Mine Safety Chief Christopher Williamson addresses a crowd gathered in Arlington, Virginia, on Aug. 3, 2023, for a public hearing on proposed silica dust regulations. Williamson is the first mine safety chief to directly address overexposure to toxic silica dust.

Credit: Justin Hicks/Louisville Public Media

So right now, it’s proposed, you mentioned that there’s this comment period that has taken place, that the industry and the public and mine safety advocates and miners get to comment on it. Before there’s a final rule, the Department of Labor has to approve whatever the final rule might be. The Office of Management and Budget has to approve this final rule. We’ve got an election year coming up. There’s often sensitivity from the White House and the Office of Management and Budget on anything that might make voters not vote for candidates that the administration supports or might not vote for the president again, if there’s something in this that offends them.

I’ve seen this happen in the past, where regulatory action was stalled in order to hold off until after an election. There may be other reasons that there could be concerns or objections, budget-wise or otherwise, from the impact on the industry. So it’s important, if you’re going to state your case, to state it as strongly as possible. This rule making does not state that case as strongly as possible. There may be lawsuits from the mining industry over this. So it’s puzzling to me why they didn’t do that. When we asked the Mine Safety Administration, they said, “The comment period exists so that people can tell us what we might need to do better. And this will be one of the things that we consider if people comment on this.

Adams: It’s mind-blowing to think that this represents thousands of people. And behind each of these numbers is a human being. You’ve interviewed dozens of these miners. What have you taken away from those interviews that’s not necessarily reflected in the data?

Berkes: I want to point out that every one of those miners had progressive massive fibrosis. We interviewed miners who had the worst stage of disease. One of the things they all talked about was what their prospects were for the future. Many of them watched fathers, brothers, uncles, grandfathers die of black lung disease, and so they know what they face. This is a tragedy that strikes generations and families: Fathers that won’t see their kids grow up. Fathers that won’t see their daughters at their weddings, won’t see high school graduations. And actually, it’s not just men, there are women miners with this disease as well.

The tragic nature of this is just so astounding and moving and deep. When you talk to a miner with severe disease at advanced stages, they can hardly get a sentence out without coughing or without having to pause for very deep breaths. A miner in my story, Danny Smith, who was diagnosed at 39, he’s 51. Now, he has his grave site picked out. I tried to call him in the last couple of weeks, and his breathing is so labored, he said he can’t get through a phone call. So we were communicating by text message.

Lungs riddled with fibrotic tissue from complicated black lung disease are displayed in the office of radiologist Dr. Brandon Crum in Pikeville, Kentucky.

Credit: Elaine McMillion Sheldon/PBS Frontline

Danny was featured in our 2018 story. We’ve been in communication since then. And he’s in terrible shape, and it’s so bad. He loved coal mining, but it’s so bad. He said now he wishes he never stepped foot in the mine. And this was a job he loved. It was a job that made a good life for him and his daughters. He’s a single parent. And there’s an enormous amount of regret, of buying into this bargain of a great life for mining coal. You know, part of what I don’t understand is, in any other workplace in our country, if you had thousands and thousands of people who were sick and dying from a disease, there would be outreach, and there would be response, and there would be response quicker than what has come.

I don’t know why people don’t seem to care about coal miners. There are 40,000 coal miners still working today. I don’t know what it takes to get a response that gets this going in a way that really protects and helps coal miners. But they are people like you and me who have done a job to make lives better for their families. They’re caught up in this whole thing and it’s killing a lot of them.

Retired coal miner Roy Keith undergoes a spirometry test at the New River Health Clinic in Oak Hill, West Virginia as part of the process of measuring lung capacity and diagnosing the onset of black lung disease.

Credit: Allen Siegler/Mountain State Spotlight

Adams: Howard Berkes, thank you for your important work on this topic. This is an important subject that has such a deep, deep impact here in central Appalachia. Thanks for coming on Inside Appalachia and speaking with us about it. 

Berkes: Always a pleasure to be with you.

A statue at the courthouse in Grundy, Virginia, honors the coal miners of Buchanan County.

Credit: Howard Berkes/NPR

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After the Public Health Watch/Louisville Public Media/Mountain State Spotlight investigation documenting thousands of advanced black lung cases was published in August, mine safety advocates and Congress members cited it in comments to MSHA about its proposed silica dust rule.

MSHA responded with a statement that said the agency was considering “suggestions that the [proposed rule] underestimates the benefit” as it develops a final version of the rule.

***Editor’s Note: The U.S. Mine Safety and Health Administration collected 157 comments on its proposed silica dust rule. A previous version of this story misstated the number of comments the agency received.

Black Lung Advocates Want More From New Proposed Silica Dust Rule

A draft rule to protect coal miners from exposure to silica dust garnered more than 5,200 comments from advocates and the American public.

West Virginia’s coal mining communities face an ongoing public health crisis as pneumoconiosis, better known as black lung, affects miners of all ages.

For decades, the nation’s top health officials have urged the Mine Safety and Health Administration (MSHA), the federal agency in charge of mine safety, to adopt strict rules protecting miners from rock dust.

In recent years, the problem has only grown as miners dig through more rock layers to get to less accessible coal, generating deadly silica dust in the process.

Rebecca Shelton, the director of policy at the Appalachian Citizens Law Center, said an MSHA inspector would visit a mine quarterly to take an air sample to test for silica dust. 

According to Shelton, those measurements are not taken regularly enough, and she and other experts are unhappy with the current rule, which allows miners to be exposed to silica dust at 100 micrograms per cubic meter of air for an eight-hour shift.

“That 100 microgram standard is not one that’s supported by organizations or entities; other health institutions like the National Institute of Occupational Safety and Health (NIOSH), they for many decades have recommended an exposure level that’s half of that,” Shelton said. “So we’ve known for a long time that this exposure level is too high.”

On July 13, MSHA proposed a rule that would cut the current limit for silica exposure in half, down to 50 micrograms per cubic meter of air for an eight-hour shift. That level matches the standard set by the Occupational Safety and Health Administration.

The new rule would also set up new protocols for sampling and monitoring silica dust exposure levels.

“For example, it now asks that coal operators do some amount of sampling for silica dust. Our understanding is that the agency would still continue its quarterly sampling for silica dust,” Shelton said. “If there are samples that are returned over that 50 micrograms limit, that permissible exposure limit, they will require the operators and mine operators to take corrective actions to reduce that limit.”

However, after decades of inaction, miners and advocates worry about the government following through on these rules. In addition, they don’t think the rule does enough to protect miners.

“One, we feel uncomfortable with the amount of lives that this rule is projected to affect because it’s not many,” Shelton said. “The analyses in the rule actually project that fewer than 100 coal miners’ lives will be saved, while hundreds continue to get sick.”

A public comment period on the new rule was extended to Sept. 11 to allow additional time to develop and submit comments on the proposal.

“It’s quite a variety of folks who have participated in this comment: former miners, organizations like ours who care about the health of miners, and also the industry has participated as well,” Shelton said. “So a lot of public health officials, doctors, a lot of folks who are directly involved in and have been directly involved in treating miners who have been ill with this black lung disease.”

More than 5,200 individuals signed onto a petition created by Appalachian Voices and Appalachian Citizens’ Law Center backing a stronger rule.

Several desired changes to the rule were consistent throughout the comment process. Commenters want the rule enforced on a more frequent basis and for routine sampling to be performed by MSHA, not coal operators.

“One of the things that we care a lot about is enforcing this new exposure limit based on more frequent and routine sampling conducted by the Mine Safety and Health Administration, and not relying on coal operators sampling, especially because the sampling technology that they have proposed in the rule is an old sampling technology that is easily manipulable by operators in order to try to reduce what that sample returns,” Shelton said.

Commenters also asked for stronger criteria for citations and to provide clear penalties for those violating the rule. 

“We do think that the rule needs to have more specificity around the criteria for issuing citations, and penalizing operators who violate the rule,” Shelton said. “The requirements or the process for issuing citations, or what will trigger a citation is not clear in the rule.”

Advocates for miners with black lung also asked that the new rule include provisions to temporarily shut down mines in violation of silica dust limits, rather than allowing them to stay open and rely on miners to use respirators.

“We do not think that it is a bad thing to have respirators and extra protection on hand. We think that absolutely should be the case, but if and when a mine has depth levels that are over that safe exposure limit, we think that production should be shut down and that miners should be withdrawn until corrective actions can take place so that the ventilation plans, the engineering controls, are adequate to reduce dust levels back down to a safer level,” Shelton said.

Lastly, commenters, advocates and miners asked for the rule to phase in better sampling technology.

“Rather than grounding the rule or having the rule rely on the current sampling technology that’s available, that there will be technology-forcing, and that it will adopt better technology as it becomes available,” Shelton said. “We know that these kinds of regulations and rules can produce the demand for better technology. And so we really want to see that change.”

Appalachia Health News is a project of West Virginia Public Broadcasting with support from Charleston Area Medical Center and Marshall Health.

Coal Miners Testify For U.S. To Lower Silica Dust Exposure Limit

Silica dust is driving a surge in new black lung cases, causing more severe forms of the disease and in younger miners.

The Mine Safety and Health Administration (MSHA) held a hearing in Raleigh County on Thursday on silica dust exposure in coal mines.

Active and retired miners testified that a lower limit for silica dust exposure is needed to protect the health of coal miners.

Silica dust is driving a surge in new black lung cases, causing more severe forms of the disease and in younger miners.

Gary Hairston, a retired miner in Fayette County who’s president of the National Black Lung Association, said it leaves younger miners unable to support their families.

“It’s bad when you’re at 35 years old and you can’t work no more,” he said. “I was at 48 and I couldn’t work no more.”

MSHA proposes a limit of 50 micrograms per cubic meter per shift, in line with Occupational Health and Safety Administration guidelines.

The public will have until Sept. 11 to comment on the proposal, an extension of 15 days.

Mine Agency To Hold Hearing In Raleigh County On Silica Dust Exposure

The hearing will start at 9 a.m. on Aug. 10 at the National Mine Health and Safety Academy, 1301 Airport Road in Beaver.

The federal Mine Safety and Health Administration will hold a hearing next week in Raleigh County on the proposed limit for silica dust exposure in coal mines.

The hearing will start at 9 a.m. on Aug. 10 at the National Mine Health and Safety Academy, 1301 Airport Road in Beaver.

The agency proposes to lower the maximum exposure to 50 micrograms per meter of air during an eight-hour shift. That matches the limit already in place under the Occupational Safety and Health Administration.

Silica dust exposure has been linked to an earlier onset of black lung disease in miners, and to more severe cases.

The hearing is the only one scheduled to take place in Central Appalachia, where new cases of black lung disease are most concentrated.

MSHA Proposes Lower Limit On Silica Dust Exposure For Coal Miners

The limit would be lowered to 50 micrograms per cubic meter per eight-hour shift, down from 100.

Federal mine safety regulators have announced a long-delayed rule that could help reduce cases of black lung disease.

The Mine Safety and Health Administration proposes a new limit on coal miners’ exposure to silica dust. 

The limit would be lowered to 50 micrograms per cubic meter per eight-hour shift, down from 100. That matches what’s already required in other industries by the Occupational Health and Safety Administration.

“The purpose of this proposed rule is simple: prevent more miners from suffering from debilitating and deadly occupational illnesses by reducing their exposure to silica dust,” said Chris Williamson, assistant secretary for Mine Safety and Health at the U.S. Department of Labor. “Silica overexposures have a real-life impact on a miner’s health.”

Studies in recent years have found that silica dust exposure is driving an increase in cases of severe black lung disease in younger miners.

In a statement Friday, Cecil Roberts, president of the United Mine Workers of America, said the change was long overdue.

“Workers in other industries have long been protected from excessive exposure to silica dust, but miners were not, even though they work in an environment where silica dust is encountered daily,” he said. “It was a travesty that the government had never taken steps to protect them. But now it finally has.”

The proposed rule also calls for exposure sampling and medical surveillance at no cost to miners.

The agency will take public comment on the proposed rule as well as hold hearings in Arlington, Virginia, and Denver on dates yet to be announced.

April 5 Marks 13th Anniversary Of Upper Big Branch Mine Disaster

Wednesday, April 5, marked the 13th anniversary of the Upper Big Branch Mine disaster. 

It was thirteen years ago when an explosion 1,000 feet underground killed 29 miners at Massey Energy’s Upper Big Branch coal mine in Raleigh County.

The explosion was caused by a buildup of methane and coal dust.

On Wednesday, wreaths were placed at a memorial in Whitesville in honor of the miners who died in the explosion.

In 2010, 48 coal miners were killed on the job nationwide, according to the Mine Safety and Health Administration (MSHA), including the 29 at Upper Big Branch.

MSHA faulted Massey Energy for the UBB disaster and issued the company 369 citations and $10.8 million in penalties.

Five years later, federal prosecutors charged former Massey Energy CEO Don Blankenship with conspiring to willfully violate safety standards. 

He served one year in prison and paid $250,000 in fines.

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