Advocates, Lawmakers Worry For Future Of Medicaid In W.Va.

Health care services for nearly 30 percent of West Virginia’s population may be difficult to access if lawmakers don’t fully fund the Medicaid program in an expected special session.

Medicaid provides free or low-cost health coverage to low-income people, families and children, pregnant women, the elderly and people with disabilities.

According to the Kaiser Family Foundation (KFF), West Virginia has the highest percentage of Medicaid enrollment in the U.S., with more than 564,000 people enrolled, or 29 percent of the state’s population in 2017.

According to the West Virginia Center on Budget and Policy, the Fiscal Year 2025 budget the legislature passed this year underfunded the state’s Medicaid program by about $150 million.

The budget Gov. Jim Justice originally proposed fully funded Medicaid, according to Kelly Allen, executive director of the West Virginia Center on Budget and Policy. 

“By our analysis, it was underfunded by about $150 million relative to the governor’s proposed budget, which would have fully essentially funded Medicaid according to what Medicaid agency officials were saying that they needed to keep current levels of services,” Allen said.

Medicaid is a joint federal and state program, which means for every dollar the state allocates toward the program, the federal government matches those funds through the Federal Medicaid Assistance Percentage (FMAP).

Each state’s FMAP is based on a formula in the federal Medicaid statute that is based on state per capita income. The lower a state’s per capita income, the higher the state’s FMAP, or federal Medicaid matching rate will be. These rates vary from 50 percent to 74 percent.

West Virginia’s Fiscal Year (FY) 2025 FMAP percentage is 73.84 percent with a multiplier of 2.8 percent.

“Because Medicaid is a matching program,” Allen said. “For every dollar of state funding that we spend, we pull down almost $3 in federal funds, that can actually total over $600 million in potential cuts to Medicaid, which is about 12 percent of the entire program.”

The governor’s proposed budget allocated about $517 million to Medicaid, whereas the enacted budget allocated $438 million.

Justice said during a press briefing on April 17 that he is not to blame for the budget cuts and said he would check and see if there was any way that it could be funded, without bloating the budget. 

“Why did we do this? Why in the world did we do this? Why did we strip $100 million out of something that we didn’t have to do and absolutely we knew it was going to really hurt people,” Justice said.

Lawmakers said the budget cuts were necessary due to possible federal government clawback of $465 million in COVID-19 relief funding for schools. 

Justice announced Friday that West Virginia will not face that clawback.

“I don’t think that argument ever carried a lot of water because I don’t think that was a reason to underfund the budget itself, I think that was a reason to hold on to surplus dollars, those one time dollars that they didn’t allocate,” Allen said.

Allen said before the pandemic, the state was spending more on Medicaid than it is now. That is because during the pandemic, a public health emergency allowed additional federal funds to be distributed to programs like Medicaid.

“One factor that allowed the state to have a flat budget for all of these years was, we didn’t, we weren’t really able to reduce our state spending on Medicaid, because we were getting all this extra federal Medicaid money due to the pandemic,” Allen said.

In 2023, federal spending stopped with the end of the public health emergency and the passage of the Consolidated Appropriations Act.

“This isn’t really an issue of Medicaid spending being out of control or a big spike in Medicaid spending,” Allen said. “It’s really just that that federal, extra match expired, which we always knew it was going to. And the state’s responsibility now is essentially to go back to its pre-pandemic levels of Medicaid funding.”

If lawmakers don’t amend the budget in an expected May special session, there are a few ways that Medicaid costs could be reduced including a reduction in eligibility.

Currently, single adults who make about $20,000 a year, or a family of four earning around $40,000 annually qualify for Medicaid. The program also covers insurance for children and people with disabilities.

Cynthia Persily, secretary of the West Virginia Department of Human Services, testified in front of the Joint Health Committee on April 15 that services could be cut if the program is not fully funded.

“Whenever there’s a shortage in Medicaid dollars, there are several things that we can do, right,” Persily said. “We can decrease enrollment in Medicaid, we can decrease services, or we can decrease the reimbursement rate. And so there would have to be some sort of combination of those three pieces in order for us to make Medicaid whole.”

Allen said there are many services the federal government considers optional.

“But I don’t think you and I and most West Virginians would think they’re optional,” Allen said. “That’s things like prescription drugs, substance use treatment, physical and occupational therapy, things like waiver programs, intellectual and developmental disability programs. These are all programs that are optional for states to offer, but they’re really, really important to people.”

A representative from the Department of Human Services, Whitney Wetzel said in an email statement to West Virginia Public Broadcasting that the department is hopeful the budget will be restored in a special legislative session. However, if cuts are sustained, the DoHS’s Bureau for Medical Services (BMS) will review optional services and rates.

Wetzel further explained that Medicaid eligibility rules are mandated by the Centers for Medicare and Medicaid Services (CMS). 

“There are currently no plans that would impact members’ eligibility,” Wetzel wrote.

Appalachia Health News is a project of West Virginia Public Broadcasting with support from Marshall Health.

Lawmakers Question State Medicaid Officials About Budget Cuts

Lawmakers had the opportunity to ask questions of state health leaders about the state’s IDD Waiver program. during a meeting of the Joint Health Committee.

Lawmakers asked questions of state health leaders about the state’s Intellectual and Developmental Disabilities (IDD) Waiver program Monday. It allows people with disabilities to live outside hospitals and institutions by connecting people with disabilities with resources like home health care workers and financial support.

After a more than $10 million decrease in the line item in the state’s budget for the IDD waiver program, advocates and providers alike have been sounding the alarm.

In 2023, the previous West Virginia Department of Health and Human Resources (DHHR), Bureau for Medical Services contracted with Myers and Staffer, an actuary firm, to conduct a “rates” study of the Aged and Disabled Waiver, and Personal Care Services programs.

The study recommended a $6.5 million rate increase for the IDD waiver program to hire and retain direct care professionals.

Cynthia Persily, secretary of the West Virginia Department of Human Services, gave a presentation on the state’s Medicaid waiver program during a meeting of the Joint Health Committee on Monday.

The committee, led by Del. Amy Summers, R-Taylor, requested that Persily present documentation of Medicaid expenditures from the past two years, itemized by state allocation and federal match funding.

During her presentation, Persily said there have been a lot of changes during those two budget years, including changes to the federal match rate for state dollars.

“Please note that this crosses two state budget years, as well as two federal budget years,” Persily said. “As well as many changes in the federal match rate for state dollars and Medicaid, as well as a number of changes in enrollment during the unwind from the public health emergency and change to the supplemental match that occurred during that time.”

Persily said the line items for requested or authorized services are much greater than the actual services billed and reimbursed.

“There are many reasons for this, including services not being used by providers or clients during the pandemic,” Persily said. “Those years that we are looking at include the pandemic, obviously, there was a lack of services in some cases being provided for instant day programs, in home services and others may have been cut back.”

Persily testified that before the pandemic, the then-DHHR was “good at balancing” the amount of appropriation with authorized services and reimbursing services.

“During the pandemic, there were many reasons that funds were not spent as noted,” Persily said.

Before and during the pandemic, Persily testified that the previous DHHR administration would use leftover funds to fund what she called “pressing costs.”

“What is important to note is that leftover funds in the past were used in previous DHHR administrations and especially during the pandemic, to fund other pressing costs across the one DHHR, including contract nursing services at state hospitals and nursing homes, as well as COVID testing through the Bureau for Public Health, Medicaid contracts services that rose during the increased enrollment during the pandemic, self-funding of legislative mandates and appropriations and others,” Persily said.

According to Persily, this was common practice in the department before it was split into three separate departments by an act of the legislature last year.

“Through line iteming the Medicaid and waiver budgets, these between department transfers will no longer take place,” Persily said. “In addition, we have very little authority to move funds across categories within that department. So that practice will lead to enhanced transparency on where funds are spent.”

In a statement published on March 12, Sen. Eric Tarr, R-Putnam, chair of Senate Finance said his committee broke down much, but not all of Human Services in subsections and restricted the ability to transfer funds outside of those subsections in the Fiscal Year 2025 state budget.

On the final day of the regular session, Tarr amended budget cuts for individuals with disabilities into the final budget, he said, in an effort to increase transparency on the state health department’s spending.

In 2023, the IDD Waiver budget line item was $108,541,736. In this year’s budget, the IDD Waiver program was allotted $97,687,562 — a decrease of more than $10.8 million.

That budget action has since spurred action from families, individuals and advocates for people with intellectual and developmental disabilities, including a rally at the capitol on Sunday afternoon.

Advocates and families cite concerns about an already struggling system. IDD service providers like EnCircle, whose CEO, Ray Ratke, also testified Monday, are struggling to stay afloat.

“We’re currently serving 27 individuals and that has been primarily a result and really only a result of the difficulties we have in staffing group homes,” Ratke said.

EnCircle took over seven Stonebrook group homes in Martinsburg in 2020. Ratke said they were excited to expand from Virginia to West Virginia.

“In Virginia, we operate schools for kids with special needs, and we operate treatment foster care,” Ratke said. “And we were looking forward to the possibility of opening schools here in West Virginia and moving into foster care as well.”

Ratke said 14 of those 27 West Virginia individuals EnCircle serves don’t have anywhere else to go or a family that is willing or able to take them in.

“But for basically everybody we serve, they consider the home their home, and it’s not an institution, it is a home,” Ratke said.

According to Ratke, in Martinsburg, people can drive a few minutes into another state or down the street to a gas station and make more money than working as a direct care worker.

In 2020, EnCircle’s starting salary was about $9 per hour. They increased that starting salary to $13 per hour thanks to the American Rescue Plan (ARPA) funding.

According to Persily, beginning in 2021 and continuing through 2023, ARPA dollars were approved by Gov. Jim Justice to be used to provide a 50 percent increase in rates to waiver programs with the understanding that 85 percent of those increases were to be passed on directly to the direct care workforce by the businesses that accepted those funds.

“Organizations who received these funds attested their agreement to this requirement,” Persily said. “They were also notified that they had until March 31 of 2025 to utilize these funds for direct care workers and other costs, carrying them through fiscal year 2024 And the majority of fiscal year 2025.”

Ratke said he was hopeful that wage increase due to ARPA funding would help attract and retain workers

“We continue to be competing with Sheetz and Target and fast-food providers,” Ratke said. “And all of those are worthwhile businesses but that’s who we’re competing with in terms of salaries.”

Persily said the total increased reimbursement that was provided to waiver providers totaled nearly $390 million.

The Bureau for Medical Services announced Friday that they would begin audits of these providers to ensure that funds were spent appropriately and that funds will be spent by March 31, 2025.

Ratke said EnCircle is facing a loss of more than a million dollars on the six group homes they operate in West Virginia.

“We’re going to lose $1.2 million,” Ratke said. “When I say we’re not alone, we hear of other providers who are in the same or similar position we had and have reserves as being 136-year-old organization, we have reserves that we can bring to bear and shore up and pay staff, but we can’t sustain that long term.”

Commissioner of the Bureau for Medical Services, Cindy Beane, also testified to the Joint Committee on Health. She said that in 2020, the waiver waitlist was cleared of more than 1,100 individuals. However, the COVID-19 pandemic also hit around this time, and in-home services were often refused.

“At this time you had individuals and families say ‘I don’t necessarily want additional workers to come into my home’,” Beane said. “We had our day program shut. So of course our spending went down dramatically. Our spend is now retrieving and coming back up to where it should be in right-sizing.”

Beane testified that the department expects to add 90 slots to the program.

“What we will do at the end of 2024 is evaluate again to see if we can have additional slots in the program within our budget,” Beane said.

Beane also testified that while she agrees there needs to be a rate increase for direct care workers, she noted there has been a 50 percent rate increase for two consecutive years.

“We ask providers, we tell providers, you can extend this money through March of 2025,” Beane said. “Some providers have done that, some providers did not.”

She said that is one of the reasons for her department’s upcoming audit of those funds.

Tarr asked Persily and Beane why money allocated for the IDD waiver program was being used for COVID testing and contract nurse wages.

“Why would you keep the request the same for an IDD waiver rather than saying, we need less for IDD waiver, and we need more for contract nursing instead of shifting the funds to contract nursing rather than appropriate it directly?” he said.

Tarr pointed out that in previous years the department spent less than was appropriated. Persily answered that they plan a year in advance with plans to improve services or wait times.

“We’re looking at expenditures for the previous year, we’re looking at expenditures that year to date, but we are also looking at plans to reduce the waitlist plans to perhaps in the future be able to impact rates,” Persily said.

Tarr said that as chair of the finance committee, he would like to see more transparency in what is being asked of the legislature.

“So that when we spend $1 by appropriation, we know where it’s going,” Tarr said. “And it goes to the intended recipient, rather than having the bureaucracy rearrange the dollars after the legislature appropriated them.”

Persily answered that often, approved services might not be available, or a person will not receive IDD Waiver services while on vacation or during a hospital stay. 

“All of those things play into why services that are authorized are always going to be higher than services that are actually received,” Persily said. “And people are estimating what services they believe, based on a, a plan of care that has been developed, they’re estimating the amount of services that people need.”

It is unclear whether IDD or other waiver line items will be reconsidered during the rumored upcoming special session.

Appalachia Health News is a project of West Virginia Public Broadcasting with support from Marshall Health.

Us & Them: Navigating Post-Pandemic Medicaid

Medicaid is undergoing a major review to determine the eligibility of millions, but not everyone is getting the notice. For this Us & Them, we look at changes to a health care safety net program that serves more than 90 million low-income Americans.

Our health care systems continue to struggle from aftereffects of the coronavirus pandemic. 

The most recent example spotlights Medicaid — a joint federal and state program that provides health coverage for more than 90 million Americans with limited resources. After several years of continuous coverage, now everyone must reapply for eligibility. 

In this episode of Us & Them, host Trey Kay reports more than a quarter of West Virginia residents rely on Medicaid for their healthcare. It pays for three-quarters of West Virginia’s nursing home residents, and nearly half of the state’s school kids use Medicaid to pay for their annual checkups. However, the application process is finding many ineligible because of changes in personal information and contact data that weren’t updated in the system. 

Join us as we look at the ‘unwinding’ of Medicaid, as millions of the nation’s most vulnerable struggle to maintain their health coverage. 

This episode of Us & Them is presented with support from the West Virginia Humanities Council, the Daywood Foundation and the CRC Foundation.

Subscribe to Us & Them on Apple Podcasts, NPR One, RadioPublic, Spotify, Stitcher and beyond.


Tricia Brooks, a research professor at the Georgetown University Center for Children and Families, parses out the nitty gritty details behind Medicaid access to explain how Medicaid coverage changed under the pandemic. The re-enrollment process for Medicaid involves millions of people, but the government cracking down on eligibility isn’t new. Like many safety net programs, Brooks told Us & Them’s Trey Kay that Medicaid is vulnerable to the push and pull of politics in Washington.

“In 2018, there were efforts made by the administration at that time to have a chilling effect on Medicaid and Medicaid enrollment for kids dropped by one million kids. And that same year, the uninsured rate for kids went up by a half a percentage point. We’d gotten down to about 5 percent uninsured kids. If we’ve lost 3.5 million, we’re talking about another 50 percent increase in the share of uninsured children in this country. And that would be a real travesty after decades of working to try to bring health coverage to almost every American child.” — Tricia Brooks, Georgetown University Center for Children and Families

Photo Credit: Georgetown University
Director Craig Robinson oversees Cabin Creek Health Systems, a Federally Qualified Health Center (FQHC) in West Virginia. Cabin Creek, like other FQHCs, exists to give low-cost care to people in need. Robinson showed Trey Kay the 14-page Medicaid application the government sent out after the COVID-19 health emergency ended. He said people are required to fill it out and send it back, to determine their ongoing eligibility for Medicaid coverage.

“I’ve actually tried to complete it [the form] myself. And I couldn’t get through it because I couldn’t understand what they were asking for. They want to know about the situation of everybody in the family, including their medical situation. They want to know about your assets, and I had no idea that assets mattered in terms of Medicaid eligibility. I thought it was all income. But they’re asking for, what’s in your checking account, what’s in your savings account kind of thing. How do I fill this out in a way that I don’t mistakenly declare myself ineligible?” — Craig Robinson, director of Cabin Creek Health Systems, Charleston, West Virginia

Photo Credit: Trey Kay/West Virginia Public Broadcasting
Jake Van Horn is a psychologist and community impact officer for Cabin Creek Health Systems in Charleston, West Virginia.

“It’s extremely short sighted to think that the upfront or initial investment in something like Medicaid doesn’t pay you dividends, in the long run. A community being better put together. Having better health care creates better employees, creates better employment opportunities, creates growth, creates better parents, creates better kids, creates better caregivers. People not struggling so much to maintain basic health, does create a more advantageous society.” — Jake Van Horn, Cabin Creek Health Systems, Charleston, West Virginia

Photo Credit: Trey Kay/West Virginia Public Broadcasting
Katie May, psychologist and clinical director for Cabin Creek Health System’s Comprehensive Addiction Recovery Program, said that many of her substance use disorder patients don’t have time to parse through Medicaid’s 14-page re-enrollment form that’s full of legalese.

“Some of them might be experiencing homelessness. I was on Medicaid during graduate school and just graduated a while ago. And so when they started doing these annual reviews again, I was getting call after call from Medicaid to do my reviews and I was thinking, ‘How are my patients missing these reviews? They won’t leave me alone.’ But it’s also a privilege that I’ve had the same phone number for 15 years and that I have an address forwarding that they were able to keep up with me. Some of my patients, for various reasons, have a different cell phone number every couple months. Whether it’s their phone is being stolen; they’re losing their phone; they can’t afford a service and are having to change services. So, yes, a 14-page application, but that’s even if they get it. And then my patients are coming in and the first time that they’re finding out about this is us telling them, ‘Oh, it looks like your Medicaid has expired.’ And then there’s panic, of course, because that’s how they get their treatment. That’s how they get lifesaving medication.” — Katie May, Cabin Creek Health Systems, Charleston, West Virginia

Photo Credit: Trey Kay/West Virginia Public Broadcasting
It’s true that publicly funded medical insurance opens the door for a lot of Americans to take better care of their health. Deedra Toppings, from Branchland, West Virginia, has had significant health challenges, some of which came during the pandemic when she was not working and eligible for Medicaid. COVID-19-era policies gave Deedra’s family a taste of stable insurance that actually worked for them. But when she returned to work, the circumstances changed. As Medicaid returns to business as usual, people are losing resources that made their lives better.

“I feel like we’re being punished because we want to work and we want to better our lives and make sure our children have what they need. When I didn’t work, and we didn’t want more for our lives, we would get the Medicaid and it would help with the hospital bills, the doctor bills, whatever. But because we both want to work, I mean, we do not make a ton of money, we don’t have extras, we don’t have all of this stuff. It just kind of feels like we’re punished, because when we work, then we don’t get the help that I necessarily need for my health.” — Deedra Toppings, Branchland, West Virginia

Photo Credit: Trey Kay/West Virginia Public Broadcasting
James Hairston, 63, is a disabled coal miner living in St. Albans, West Virginia. He told Trey Kay that his disability occurred when “1,800 pounds of sandstone and coal” collapsed on him and pinned him to the mine floor. Hairston and his wife are both disabled. He used to get Medicaid benefits, which meant he could use home health care. That provided help with household chores and meals. He didn’t see it as a handout, just some help. Under the COVID-19 emergency declaration, Hairston couldn’t be removed from Medicaid. But once that ended, the state reported that he made too much to qualify.

“It’s a real hurting feeling. I’ve worked to provide a good living for my wife and kids. It’s hard for me to look at it and say, ‘Well, you know, you cut me off.’ And I didn’t bring this pain and all this stuff to myself. It’s just, I mean, I love what I was doing and I miss it so bad and I still had a lot of good years left in me.” — James Hairston

Photo Credit: Trey Kay/West Virginia Public Broadcasting
James Hairston shows the crack in the miner’s helmet that he was wearing the day the mine ceiling fell in on him and ended his coal mining career.

Photo Credit: Trey Kay/West Virginia Public Broadcasting
Eric Hicks works with a range of Medicaid clients, including James Hairston, through the local home care company he runs called Right At Home. Right At Home is a nationwide franchise and in West Virginia, most of the company’s business comes from Medicaid patients. Hicks says when the government stops paying for a person’s home care, it puts families in a bind. Most times, they’ll try to find friends or family to help out. If that’s not available, the only other alternative is often a skilled nursing facility.

Trey Kay asked Hicks what Medicaid gives someone like James Hairston. The answer is simple: autonomy.

“There is absolutely a place for skilled nursing facilities and the services that they provide. When a person graduates from in-home care, that’s where they go, because we cannot meet all their needs. But it’s that gap in between, that people want to stay at home and they have the ability to stay at home if they have a little bit of assistance. They want to have all their things that they have at home and not be forced to leave their home to go to a place that they’re not comfortable with. A lot of people don’t want to be in a more institutionalized setting, they want to be able to comfortably have as many of their family and friends over to visit whenever they want to come by, not be restricted by time constraints, et cetera.” — Eric Hicks, president of Right at Home, Charleston, West Virginia

Photo Credit: Trey Kay/West Virginia Public Broadcasting

Check out our colleague Emily Rice’s AP of the Virginias award-nominated series Unwinding Medicaid.

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