West Virginians Reflect on Healthcare

President Trump is four days into his first term and already has made big moves to repeal former President Obama’s signature healthcare law. A repeal of…

President Trump is four days into his first term and already has made big moves to repeal former President Obama’s signature healthcare law. A repeal of the Affordable Care Act – also called Obamacare – has the potential to affect millions of Americans. In this audio postcard, three West Virginians – a former chair of the House health committee, a college student and a small business owner – talk about how they are feeling about their healthcare coming into an era of Trump.

Appalachia Health News is a project of West Virginia Public Broadcasting, with support from the Benedum Foundation, Charleston Area Medical Center and WVU Medicine.

Miners Worried About Losing Black Lung Benefits Through ACA Repeal

At the Pulmonary Rehabilitation Clinic in Scarbro, oxygen tubes dangle from the noses of three miners slowly pedaling on stationary bikes.  All of these men have black lung – a disease caused by breathing in coal dust. Over time, the dust coats the lungs and causes them to harden. Hard lungs don’t easily expand and contract, and that makes it difficult to breath.

 

“You try to get air in them, and they don’t want to cooperate with you as they did before,” says retired miner James Bounds, speaking with great effort. Not every coal miner gets black lung, just as some smokers don’t get cancer. But for those who do, Bounds says, the disease is devastating.

 

“There’s no cure at all,” he says.  “It keeps getting harder and harder until one day, I guess, you take your last breath and they won’t expand for you no more.”

Credit Kara Lofton / West Virginia Public Broadcasting
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West Virginia Public Broadcasting
Lester Burnette bikes at the Pulmonary Rehabilitation Clinic in Scarbro.

Bounds is one of about 38,000 miners and widows currently receiving black lung benefits – compensation for the physical damage he sustained while doing his job. It took him four and a half years to get approved, despite the fact that his lungs are so bad he has to stop moving to talk.

 

But now the qualification process is supposed to move faster. The Affordable Care Act includes special provisions that make the process of getting black lung benefits easier for coal miners.  If the ACA is repealed, gaining these benefits could become much more difficult, effectively harming a group of people President Donald Trump has promised to protect.

 

Debbie Wills coordinates the black lung program forValley Health primary care system. She says that prior to the ACA, it was almost impossible to qualify for the compensation benefits.  Coal companies pay the benefits, and also pay into a federal trust fund that pays when coal companies can’t. Wills says theprocess was arduous for miners.

 

“Coal company lawyers would doctor shop around the country and find two, three, four, five, seven doctors to say, ‘Yes this miner is disabled, but it’s not because of black lung,’” she says.

 

The Affordable Care Act includes something called theByrd Amendments.  One shifts the burden of proof — instead of miners having to prove that mining caused their black lung, the coal companies have to prove that mining didn’t.

 

“You still have to prove the 100 percent disability, which is hard,” says Wills. “But if you can prove that, and if you’ve worked 15 or more years or longer in the mines, then you’re entitled to a presumption that your disease arose from your coal mine employment.”

 

Another part provides lifetime benefits to a dependent spouse who survives the death of a miner, if the miner had been receiving the benefits before death.

 

If the ACA is repealed without a replacement, cases that were approved after the ACA went into effect could be reopened, leaving the miner or surviving spouse  vulnerable to losing the benefits. And, the burden of proof may shift again, making it difficult for applicants to qualify.

 

Earlier this month, both theHouse and theSenate introduced resolutions to preserve the Byrd Amendments from a broader ACA repeal. Rep.Evan Jenkins (R-W.Va.),  an ACA opponent, introduced the measure in the House.

 

“I am a firm believer that Obamacare is already in a death spiral and desperately needs to be fixed,” Jenkins says.  “While we are going to work to improve our health care system, I feel strongly about my resolution to make sure that the presumption relating to black lung is contained in whatever is the end product of this work this year.”

Appalachia Health News is a project of West Virginia Public Broadcasting, with support from the Benedum Foundation, Charleston Area Medical Center and WVU Medicine.

What Would a Repeal of the Affordable Care Act Mean for W.Va.?

During his campaign, president-elect Donald Trump promised to repeal the Affordable Care Act – a move many West Virginians say they support after facing rising premiums and deductibles.  But a repeal without a replacement plan could be disastrous for the millions of Americans who have gained health insurance under the law, including 173,000 West Virginians newly covered under Medicaid expansion and 37,000 who have bought private insurance plans through the Marketplace. And Republicans have yet to release a replacement plan.

 

 

“I’m not going to throw 170,000 West Virginians – and another 40,000 on the exchange and another how many thousands of seniors – out in the cold unless I see a better plan,” said U.S. Sen. Joe Manchin of West Virginia during a press call.

 

Despite the outcry from Democratic members of the body, about a week ago Republican Congressional leaders plowed forward with the budget resolution that is in part designed to begin the process of repealing the ACA. So, what might this repeal look like?

 

“There’s a good model from what Congress passed last year in January of 2016 that was vetoed by president Obama,” said Edwin Park, vice president for health policy for the national Center on Budget and Policy Priorities.

 

“And that would have eliminated the Affordable Care Act’s Medicaid expansion, [and] the subsidies to help people buy private insurance through the new marketplaces. But those two repeals would be delayed for some period of time,” he said. “Under that bill it was two years, [but] there’s some talk of it being more than two years for this upcoming repeal package.”

 

If the new repeal looks like the one proposed in 2016, Park said the ACA requirements that individuals buy insurance or pay a penalty, and that large employers offer health insurance to their workers or pay a penalty, would be eliminated immediately. The vetoed bill also eliminated all of the taxes that are used to offset the cost of the major coverage expansions of the ACA.

 

But this resolution is unlikely to touch consumer protections such as the prohibition on insurers denying coverage to people with preexisting health conditions and children staying on their parents’ health insurance until age 26.

 

Still “the number one question on everyone’s mind was, ‘Will I lose my insurance?’” said Jeremy Smith, the outreach coordinator for a West Virginia nonprofit that helps people sign up for insurance through the ACA.

 

According to research recently released by the Urban Institute, the answer to that question is, “Not right away.” But by 2019, 184,000 West Virginians would lose coverage under this resolution. Additionally, the state would lose $164 million in federal funding, uncompensated care costs would rise, and moderate-income working families would lose the subsidies that now on average help them pay nearly three-quarters of their monthly premiums.

 

In West Virginia, open enrollment for the 2017 marketplace is currently underway. Interestingly, after Trump won the election, “we saw an unprecedented number of people reaching out to our organization to get help signing up,” said Smith.

 

Smith said that’s because people think that if they are already signed up they won’t lose the coverage they have, but if they don’t sign up they might get frozen out of coverage once the repeal takes effect.

 

Some Republicans, including President-elect Trump, may be getting cold feet about pushing through a repeal without a replacement, though. According to the Washington Post, Trump is leaning on Senator Rand Paul from Kentucky to persuade the rest of the GOP not to vote on the budget resolution with language in it to repeal the ACA. That is, until a replacement plan is in place.

 

The Post said that Trump did not give details on what he would like to see in the replacement plan, but that he did not appear concerned about either the lack of a replacement plan or growing national worries about a repeal.

 

Appalachia Health News is a project of West Virginia Public Broadcasting, with support from the Benedum Foundation, Charleston Area Medical Center and WVU Medicine.

Senate Republicans Move Forward with Plans to Repeal the Affordable Care Act

President Obama met with Senate Democrats today to discuss strategies to save his signature health care law. Meanwhile Senate Republicans have already introduced a budget resolution that would unravel large pieces of the Affordable Care Act with a majority vote.

However, Republicans have yet to release a replacement plan, instead saying they will repeal, but delay implementation of the law for a couple years. Senate Democrats, including Joe Manchin, are concerned that if the law is repealed without a replacement lined up to take its place, hundreds of thousands of people could lose their health insurance.

“ I said if you’re willing in 2 or 3 years, you’ve been talking about it for 6 years, why don’t we sit down and fix it and vote on each one to fix it that way nobody loses anything,” said Manchin.

Manchin argues that while there are pieces of the healthcare law that need to be fixed, the bones of the law are good and hugely benefit West Virginians. Instead of throwing out the baby with the bathwater, he says, let’s introduce legislation that strengthens, rather than dismantles the law. However Manchin acknowledges that since President-elect Trump built part of his campaign around the cry “repeal the Affordable Care Act,” fixing it may not be a viable solution at this point. 

Appalachia Health News is a project of West Virginia Public Broadcasting, with support from the Benedum Foundation, Charleston Area Medical Center and WVU Medicine.

Federal Secretary, Patients Cite 'Obamacare' Impact

Secretary of Health and Human Services Sylvia Mathews Burwell visited Charleston today to voice support for the Affordable Care Act.

Burwell came as part of a West Virginians for Affordable Health Care event to advocate for universal and affordable health care.

The event included testimonials from eight West Virginians who have benefited from various provisions in the Affordable Care Act.  Advocates of the law, including Secretary Burwell say they are very concerned about the future of the ACA under the leadership of president-elect Donald Trump.

Donald Trump has said under his administration, the Affordable Care Act will be repealed. Of particular concern to advocates is the future of protective ACA provisions, including expanded Medicaid, the ability to stay on parental insurance policies until age 26 and the inability of insurance companies to deny coverage to patients with preexisting conditions.

In the past six years, about 20 million people have gained healthcare coverage in the United States under the ACA, including more than 220,000 West Virginians. Advocates say they will fight to protect this coverage in the coming months.

Appalachia Health News is a project of West Virginia Public Broadcasting, with support from the Benedum Foundation.

Federal Secretary to Discuss 'Obamacare' in Charleston

Federal health Secretary Sylvia Burwell plans to join a discussion in her native West Virginia on the federal health law that expanded insurance coverage to 165,000 residents.

The Affordable Care Act is a signature Obama administration initiative that president-elect Donald Trump has vowed to at least partly roll back.

Trump has praised its guaranteed insurance coverage of people with pre-existing conditions and allowing young adults to remain on parents’ policies until age 26.

That 2010 law, called “Obamacare,” established federally supported exchanges where almost 13 million U.S. residents have enrolled for commercial insurance, some qualifying for subsidies.

Another 7 million people joined expanded Medicaid for poor and disabled residents.

West Virginia reports covering 179,653 more people in Medicaid by raising income eligibility to 138 percent of the federal poverty level.

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