Justice Veto Of Alzheimer’s Research Funding Draws Ire

A bill Gov. Jim Justice vetoed last week would have helped fund research to treat Alzheimer’s Disease, substance use disorder and more.

A bill Gov. Jim Justice vetoed last week would have helped fund research to treat Alzheimer’s Disease, substance use disorder and more. 

Both the House and Senate unanimously passed House Bill 5014, which would have made a $2 million supplemental appropriation to support research at West Virginia University’s Rockefeller Neuroscience Institute.

During the session, House Speaker Roger Hanshaw, R-Clay, took a rare occasion to speak directly to the bill. He spoke of the WVU Neurology team using ultrasound technology to go beyond treating neurological disorders of many kinds.

They have effectively cured Parkinson’s, Alzheimer’s disease and opioid addiction,” Hanshaw said. “They now have, in hand, FDA clearance to extend their clinical trial beyond Alzheimer’s, Parkinson’s, and opioid addiction to PTSD specifically targeted veteran populations and obesity. To treat and cure disorders that plague West Virginians in disproportionately high amounts. I encourage you to vote for the appropriation.”

In explaining his veto, Justice said, in a letter to the House and Senate, the appropriation had little funding context or direction. He said the bill language was ambiguous, and with budget questions remaining, the state needs to be prudent.

Del. Mike Pushkin, D-Kanawha, the West Virginia Democratic Party Chairman, said there was no ambiguity in a bipartisan, unanimous vote.

“134 members of the legislature knew exactly what we were voting on,’ Pushkin said. “The work that has been done up at WVU has received national attention is something that we should completely support, not veto. This is the same governor, who so willingly gave $10 million to build a baseball park vetoes this money for such important Alzheimer’s research. It’s just beyond comprehension.”

It is now too late to override the veto. Justice said the WVU appropriation may be considered during an anticipated upcoming special legislative session. Pushkin said it’s likely that’s what will happen.

Marshall University Receives Grant To Create Remote Speech Therapy Program

Marshall University’s Speech and Hearing Center is receiving funding for a statewide speech therapy program for those with Parkinson’s Disease.

Marshall University’s Speech and Hearing Center is receiving funding for a statewide speech therapy program for those with Parkinson’s Disease.

The $280,000 grant from the nonprofit Parkinson Voice Project will help provide the resources to provide speech therapy to patients remotely.

It’s part of an initiative called Speak Out, which aims to help those with Parkinson’s who are struggling with speech or swallowing. Marshall University is one of 16 schools nationwide chosen for the program.

“We have been training speech language pathologists for several years,” project founder Samantha Elandary said. “Speak Out therapy is available in many hospitals, universities, private practices, other rehab organizations all across America and the world. But there are still a group of patients who cannot access the treatment.”

Marshall program lead Ernay Adams said the center will be able to better reach out to patients who live in rural areas, are disabled or are otherwise inaccessible.

“We’ve kind of been limited up to this point, to people who live within about a 30 minute drive,” Adams said. “We’ve done some telemedicine, but not to the extent that we plan to or will be doing with this.”

Adams said the Speak Out program in place at Marshall is ready to accept referrals, with a tentative start date to begin speech therapy with individual placements on June 1 as the semester winds down and training begins for graduate students.

Individual speech therapy provided through the Speak Out program will also be free of charge to anyone with Parkinson’s disease.
More than 7,000 West Virginians currently live with Parkinson’s Disease.

The nonprofit Michael J. Fox Foundation estimates West Virginia has the third highest population with Parkinson’s in the nation.

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