Families and Caregivers Struggle to Find Resources Inside Appalachia

Today, many seniors in rural communities don’t have the support they need to live independently, safely. Who’s going to care for our elders in the years to come? In this episode of Inside Appalachia, we’ll explore the resources available to caregivers and their loved ones. We’ll also hear what some people are doing to help seniors feel less alone and isolated.

Across most of central Appalachia, population is declining as young people leave to find work. Those who stay are rapidly aging. In West Virginia, for instance, about 16 percent of the population is 65 or older, according to a Department of Health and Human Resources report. Seniors are expected to be about a quarter of the total population by 2030. 

In this episode:

• Families Discuss Struggles and Help for Caregivers 

• Fighting Loneliness 

• Taking Care of a Loved One with Alzheimer’s

• Taking Care of a Partner at the End of Life 

• Interview with a Hospice Care Nurse 

Appalachia Health News Coordinator Kara Lofton spent several months researching and reporting on these issues, and we’re hearing her full series about aging in this week’s episode.

Staying Home

Is it better to stay in your home when you get older, or move into an assisted care facility? Most older adults Lofton spoke to for this series said they want to stay home as they age. But is that the best option? It depends on the situation.

There are a handful of programs across Appalachia to help people stay in their homes as they get older. But some have limits – you have to qualify for Medicaid, for instance. Others that help seniors just above the poverty line don’t have the capacity to handle the need. People can sit on waitlists for months, or even years.

Shelia Brown sits on her couch below framed pictures of she and her husband over the years. The two were married for 50 years. Her husband Waitman passed away from lung cancer in 2018 after being in hospice for almost a year.
Credit Kara Lofton / West Virginia Public Broadcasting

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Fighting Loneliness

Isolation and loneliness can have negative impacts on our health. The new National Report on Healthy Aging found that 1 in 3 American seniors report being lonely. Laurie Theeke, a nursing professor at West Virginia University who has conducted studies on loneliness, said isolation and loneliness can have a big impact on human health. “We know that loneliness has a negative impact on human health — let me just say that,” she said. “And it also is linked quite clearly to inflammatory problems like hypertension, coronary artery disease, stroke and depression. And we know it leads to functional decline and overall mortality in older adults samples… from many countries.”

End of Life

People can be suspicious of end-of-life care, especially hospice. There’s a perception that when hospice comes in, it’s only for the last hours before someone dies. But hospice advocates argue the service helps the dying live their last weeks or months better, and can also ease the caregiving burden on their families.

To get a better idea of what hospice is all about, Lofton sat down with Lori Carter, who’s been a hospice nurse for 20 years. Carter said for her and for many of the hospice nurses she knows, the work is a calling.

Some of what she does is straight-up nursing — managing pain, dressing wounds, and addressing symptoms of end-stage disease. But the most subtle part of the job is helping families navigate one of the most intimate and emotional times of their lives.

There are a number of challenges facing our elderly. We want to hear from you. Are you caring for someone in your family? What are the resources you think we neglect to offer people as they grow older?

If you’re above the age of 65, we’d like to know how it’s going, and if you think we as a society do enough to care for our elders, or support your independence. Send us an email to insideappalachia@wvpublic.org. Or send a letter to 600 Capitol Street, Charleston, WV 25311.

We had help producing Inside Appalachia this week from Appalachia Health News Coordinator Kara Lofton. Appalachia Health News is a project of West Virginia Public Broadcasting, with support from CAMC and Marshall Health. 

Music in today’s show was provided by Matt Jackfert, Dinosaur Burps and Michael Howard. 

Inside Appalachia is produced by Roxy Todd. Eric Douglas is our associate producer.  Our executive producer is Jesse Wright. He also edited our show this week Our audio mixer is Patrick Stephens. 

You can find us online on Twitter @InAppalachia.